This is a discussion on Trisomy 13 and my family within the Special Needs Parenting forums, part of the Developmental & Parenting Stages category; I'd never heard of the illness either. It must be so hard for you sometimes. She looks like such a ...
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#11
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I'd never heard of the illness either. It must be so hard for you sometimes. She looks like such a little fighter in those pictures and looks very happy. Claire xx |
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#12
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I have to echo everything the others have said, she is a lovely little girl and sounds like a real fighter. Welcome to the site too I am karen 44, mum to benjamin who is 4 this saturday(4th) |
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#13
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I cannot begin to find the words for you, but wanted to say I think she is beautiful, so sweet. I had never heard of the illness either and my heart goes out to you and your family - you must all be so strong. Welcome to the site, I look forward to hearing more about you and your family Sam xx |
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#14
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It must be such hard work for you and your family, but Macy is such a cutie little thing. Lyn xxxxx |
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#15
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Hi Kat I love the photos of your little one, I am just so sorry to read of her illness and everyday that goes by you must be so proud of Macy. I think its really nice of you to let us know here what the illness is because alot of us had not heard. We are all here to support you the best we can should you need it. Take Care shell.xx |
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#16
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Aww shes a lovely little girl Kat. She sounds like such a little fighter too you must be so proud. I can imagine you cherish everyday with your little girl and i am sure she brings you much joy and happiness. If ever you want to talk we are all here for you. Laura xx |
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#17
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Hi kat Im Daynna im mum to Deacan 3yrs and Serenna 2yrs. I have heard of it, i read a thread on a little boy on another site a few months ago, Your dd sounds like shes a little fighter she looks so sweet! xx
__________________ Deacan 26.06.04- my little boy is growing quick Hes not a toddler anymore, Hes my special little man! Serenna 14.07.05- my princess, my little madem life wouldnt be the same without her, shes a gorgeous girl! |
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#18
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hi iam jayne and i echo every post too ...take care u r lucky to have that smiling face to see every day
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#19
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HI Kat thankyou so much for sharing your daughters story with us. I can't begin to imagine what you must feel like. You have a beautiful little girl. We are all here to help you in anyway that we can Clare xx |
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#20
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Thanks ladies on another forum i got moaned at for talking about her so much and dont use that anymore so thank u for lwtting me alk about her.
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